Having both me and my son down at the same time in deep RA flare is just something i never want a repeat of again. Had to take my son into the docs yesterday and trying to get two people who could hardly walk to one place is terrible hard to do. sitting in the doctors chairs for any amount of time was killer. Took three hours to which both of our bodies said OH NO YOU DIDNT!!!!!!! and we were worse for the wear. Crying out in pain in public and stumbling along is just not something we sick folks want anyone to see of us. This is our private hell.
The “You dont look sick” club.
My heart is still breaking in two billion pieces as my son is having such a hard time. He is missing time away from his friends, which is something he needs so much. He wants to be “normal”
His video game is all that keeps him attached to the world when hes down and sick and the playstation network has been down a month. This enables him to play with online friends in real time on the game and tv in our livingroom.. It keeps him still talking with other kids and having a good time despite his pain and issues. I wish i could make the game work for him. Hes so lonely and isolated. He really needs the feel of other people in the world. Not just me and dad and sister and the critters in the house. We think we are great company but for a teenaged boy who doesnt feel good i think hed rather talk like a kid with peers and have fun in his own way.
Dear Playstation HURRY UP i know you have alot to do due to the major hacking you got but my by needs this……
ONline he isnt the sick kid. Online he doesnt have to explain to anybody why hes crying out in pain or not walking.
When he goes back to school the kids will either not ask him were hes been or they will and he has to say oh yeah ive been hella sick. HIS WHOLE life hes had to explain atleast to some degree on how sick he was. I think the kids just dont ask anymore which is sad also they dont call him when hes out they just say oh yeah hes gone must be sick again. Hes sick and gone so often from school its just common place anymore. and no one really gives a crap. His friends hardly knw whats wrong with him its hard to explain alot of his issues and when he tells them he has arthritis they call him an old man. they dont understand a thing about it. How can they i didnt knw hoow it affected peple f young ages specialy myself till i was diagnosed finaly after years of thinking iw as crazy and broken. How can i expect for anyone specially children to understand.
The invisable disease.
